[Family's abilities and diffculties in caring for children with cerebral palsy].

Autor: Dantas MS; Centro Universitirio de Joāo Pessoa-UNIPE, João Pessoa-Paraíba, Brasil., Pontes JF, de Assis WD, Collet N
Jazyk: portugalština
Zdroj: Revista gaucha de enfermagem [Rev Gaucha Enferm] 2012 Sep; Vol. 33 (3), pp. 73-80.
DOI: 10.1590/s1983-14472012000300010
Abstrakt: This is a qualitative research and exploratory-descriptive study aimed at finding out the family's abilities and difficulties in caring for children with cerebral palsy. Data was collected from seven families, between March and April 2009, through semi-structured interviews. The analysis followed the principles of thematic interpretation. The diffculties are more evident than the abilities and bring repercussions to daily life activities. Dealing with difficulties to control seizures, spasticity, changes in postural tone, occurrence of primitive reflexes, result in the complexity to perform simple tasks like feeding, bathing, locomotion, because children become increasingly dependent on caregivers. Over time, the difficulties give way to the routine and adaptation to the child's daily life. Strengthening relationships with families by improving their bonds and developing quality and comprehensive actions, promotes the welfare of the family/child with cerebral palsy.
Databáze: MEDLINE