First symposium of ichthyosis experts.

Autor: Hernández-Martín A; Servicio de Dermatología, Hospital Infantil Niño Jesús, Madrid, España. Electronic address: ahernandez_hnj@yahoo.es., Torrelo-Fernández A, de Lucas-Laguna R, Casco F, González-Sarmiento R, Vega A, Pedreira-Massa JL, de Unamuno-Pérez P, Larcher F, Arroyo I, Traupe H
Jazyk: English; Spanish; Castilian
Zdroj: Actas dermo-sifiliograficas [Actas Dermosifiliogr] 2013 Dec; Vol. 104 (10), pp. 877-82. Date of Electronic Publication: 2013 Jan 30.
DOI: 10.1016/j.ad.2012.11.018
Abstrakt: On June 22, 2012 the First Symposium of Ichthyosis Experts in Spain was held at the Hospital Niño de Jesús in Madrid. It was a one-day symposium for dermatologists, pediatricians, and physicians-in-training interested in this disease, as well as for other health care professionals involved in the care of patients with ichthyosis. The aim of the meeting was to try to structure the care of ichthyosis patients in Spain. As happens in other rare diseases, because of the low prevalence of ichthyosis and the absence of designated referral centers, the number of patients treated in each center is very low and few dermatologists have any real clinical experience with this condition or know how to order diagnostic genetic tests. This article summarizes the presentations given at the symposium and is intended as a reference for anyone interested in the subject.
(Copyright © 2012 Elsevier España, S.L. and AEDV. All rights reserved.)
Databáze: MEDLINE
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