| Autor: |
Robertson CM; Department of Pediatrics, University of Alberta, Edmonton, AB, Canada T6G 2R3., Sauve RS, Joffe AR, Alton GY, Moddemann DM, Blakley PM, Synnes AR, Dinu IA, Harder JR, Soni R, Bodani JP, Kakadekar AP, Dyck JD, Human DG, Ross DB, Rebeyka IM |
| Jazyk: |
angličtina |
| Zdroj: |
Cardiology research and practice [Cardiol Res Pract] 2011; Vol. 2011, pp. 965740. Date of Electronic Publication: 2011 May 08. |
| DOI: |
10.4061/2011/965740 |
| Abstrakt: |
Newly emerging health technologies are being developed to care for children with complex cardiac defects. Neurodevelopmental and childhood school-related outcomes are of great interest to parents of children receiving this care, care providers, and healthcare administrators. Since the 1970s, neonatal follow-up clinics have provided service, audit, and research for preterm infants as care for these at-risk children evolved. We have chosen to present for this issue the mechanism for longitudinal follow-up of survivors that we have developed for western Canada patterned after neonatal follow-up. Our program provides registration for young children receiving complex cardiac surgery, heart transplantation, ventricular assist device support, and extracorporeal life support among others. The program includes multidisciplinary assessments with appropriate neurodevelopmental intervention, active quality improvement evaluations, and outcomes research. Through this mechanism, consistently high (96%) follow-up over two years is maintained. |
| Databáze: |
MEDLINE |
| Externí odkaz: |
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