Pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life care.
| Autor: | Beckstrand RL; College of Nursing, Brigham Young University, Provo, Utah 84602-5432, USA. renea@byu.edu, Rawle NL, Callister L, Mandleco BL |
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| Jazyk: | angličtina |
| Zdroj: | American journal of critical care : an official publication, American Association of Critical-Care Nurses [Am J Crit Care] 2010 Nov; Vol. 19 (6), pp. 543-52. Date of Electronic Publication: 2009 Dec 21. |
| DOI: | 10.4037/ajcc2009497 |
| Abstrakt: | Background: Each year 55 000 children die in the United States, and most of these deaths occur in hospitals. The barriers and supportive behaviors in providing end-of-life care to children should be determined. Objective: To determine pediatric intensive care unit nurses' perceptions of sizes, frequencies, and magnitudes of selected obstacles and helpful behaviors in providing end-of-life care to children. Method: A national sample of 1047 pediatric intensive care unit nurses who were members of the American Association of Critical-Care Nurses were surveyed. A 76-item questionnaire adapted from 3 similar surveys with critical care, emergency, and oncology nurses was mailed to possible participants. Nurses who did not respond to the first mailing were sent a second mailing. Nurses were asked to rate the size and frequency of listed obstacles and supportive behaviors in caring for children at the end of life. Results: A total of 474 usable questionnaires were received from 985 eligible respondents (return rate, 48%). The 2 items with the highest perceived obstacle magnitude scores for size and frequency means were language barriers and parental discomfort in withholding and/or withdrawing mechanical ventilation. The highest supportive behavior item was allowing time alone with the child when he or she has died. Conclusions: Pediatric intensive care unit nurses play a vital role in caring for dying children and the children's families. Overcoming language and communication barriers with children's families and between interdisciplinary team members could greatly improve the end-of-life experience for dying children. |
| Databáze: | MEDLINE |
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