Babies with myelomeningocele in Poland: parents' attitudes on fetal surgery versus termination of pregnancy.

Autor: Koszutski T; Department of Paediatric Surgery, Silesian Medical University, ul. Medykow 16 , 40-752, Katowice, Poland. urologia@gczdim.katowice.pl, Kawalski H, Kudela G, Wróblewska J, Byrka-Owczarek K, Bohosiewicz J
Jazyk: angličtina
Zdroj: Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery [Childs Nerv Syst] 2009 Feb; Vol. 25 (2), pp. 207-10. Date of Electronic Publication: 2008 Jun 17.
DOI: 10.1007/s00381-008-0653-1
Abstrakt: Background: Recent surgical advances have resulted in fetal surgery becoming an option for children with myelomeningocele (MMC). However, there is little information about the parents' attitudes towards such therapy.
Methods: Following a lecture on the current status and problems of fetal surgery for MMC, a 12-item questionnaire was administered to 58 parents of children with MMC. Questionnaire topics included knowledge of the disease and treatment options, as well as attitudes and concerns towards fetal surgery or termination of pregnancy.
Results: Following the lecture, 14 (out of 58) parents felt that knowledge of the disease would allow for abortion to be an option, while 18 were uncertain. Once informed of potential risks and benefits of fetal surgery, 34 parents had a positive or rather positive attitude towards this procedure.
Conclusions: On the basis of these results, it was concluded that this population is potentially interested in the use of fetal surgery.
Databáze: MEDLINE
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