How to customize common data models for rare diseases: an OMOP-based implementation and lessons learned.

Autor: Ahmadi, Najia1 (AUTHOR) najia.ahmadi@tu-dresden.de, Zoch, Michele1 (AUTHOR), Guengoeze, Oya2 (AUTHOR), Facchinello, Carlo2 (AUTHOR), Mondorf, Antonia2 (AUTHOR), Stratmann, Katharina2 (AUTHOR), Musleh, Khader2 (AUTHOR), Erasmus, Hans-Peter2 (AUTHOR), Tchertov, Jana1 (AUTHOR), Gebler, Richard1 (AUTHOR), Schaaf, Jannik3 (AUTHOR), Frischen, Lena S.4 (AUTHOR), Nasirian, Azadeh5 (AUTHOR), Dai, Jiabin1 (AUTHOR), Henke, Elisa1 (AUTHOR), Tremblay, Douglas6 (AUTHOR), Srisuwananukorn, Andrew7 (AUTHOR), Bornhäuser, Martin8 (AUTHOR), Röllig, Christoph8 (AUTHOR), Eckardt, Jan-Niklas8,9 (AUTHOR)
Zdroj: Orphanet Journal of Rare Diseases. 8/14/2024, Vol. 19 Issue 1, p1-17. 17p.
Databáze: Academic Search Ultimate
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