Twelve Years of the Gaucher Outcomes Survey (GOS): Insights, Achievements, and Lessons Learned from a Global Patient Registry.

Autor: Elstein, Deborah1 (AUTHOR) debby.elstein@gmail.com, Belmatoug, Nadia2 (AUTHOR) nadia.belmatoug@aphp.fr, Bembi, Bruno3 (AUTHOR) brunobembi.b@gmail.com, Deegan, Patrick4 (AUTHOR) patrick.deegan1@nhs.net, Fernandez-Sasso, Diego5 (AUTHOR) diegofernandezsasso@criocenter.com, Giraldo, Pilar6,7 (AUTHOR) giraldocastellano@gmail.com, Göker-Alpan, Özlem8 (AUTHOR) ogoker-alpan@ldrtc.org, Hughes, Derralynn9 (AUTHOR) derralynnhughes@nhs.net, Lau, Heather10 (AUTHOR), Lukina, Elena11 (AUTHOR) elenalukina02@gmail.com, Revel-Vilk, Shoshana12,13 (AUTHOR) srevelvilk@gmail.com, Schwartz, Ida Vanessa D.14 (AUTHOR) idadschwartz@gmail.com, Istaiti, Majdolen12 (AUTHOR) joleenist@szmc.org.il, Botha, Jaco1 (AUTHOR) noga.gadir-david@takeda.com, Gadir, Noga1 (AUTHOR) joern.schenk@gmx.net, Schenk, Jörn1 (AUTHOR), Zimran, Ari12,13 (AUTHOR) azimran@gmail.com
Zdroj: Journal of Clinical Medicine. Jun2024, Vol. 13 Issue 12, p3588. 16p.
Databáze: Academic Search Ultimate
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