The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.

Autor: Westerheim, Ingunn1 (AUTHOR), Hart, Tracy2 (AUTHOR), van Welzenis, Taco1 (AUTHOR), Wekre, Lena Lande3 (AUTHOR), Semler, Oliver4 (AUTHOR), Raggio, Cathleen5 (AUTHOR), Bober, Michael B.6 (AUTHOR), Rapoport, Maria7 (AUTHOR) maria@wickenstones.com, Prince, Samantha7 (AUTHOR), Rauch, Frank8 (AUTHOR)
Zdroj: Orphanet Journal of Rare Diseases. 3/21/2024, Vol. 19 Issue 1, p1-21. 21p.
Databáze: Academic Search Ultimate
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