Assessment of Parental Needs and Quality of Life in Children with a Rare Neuromuscular Disease (Pompe Disease): A Quantitative–Qualitative Study.

Autor: Benedetto, Loredana1 (AUTHOR) loredana.benedetto@unime.it, Musumeci, Olimpia1,2 (AUTHOR) olimpia.musumeci@unime.it, Giordano, Annunziata1 (AUTHOR) nunzia44@live.it, Porcino, Mattia1,2 (AUTHOR) mattia.porcino@studenti.unime.it, Ingrassia, Massimo1 (AUTHOR) massimo.ingrassia@unime.it
Zdroj: Behavioral Sciences (2076-328X). Dec2023, Vol. 13 Issue 12, p956. 19p.
Databáze: Academic Search Ultimate
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