Educational needs of patients, families, and healthcare professionals to support the patient journey in haemophilia gene therapy in the UK.

Autor: Boyce, Sara1 (AUTHOR) sara.boyce@uhs.nhs.uk, Fletcher, Simon2 (AUTHOR), Jones, April3 (AUTHOR), Kohli, Ruchika4 (AUTHOR), Mangles, Sarah5 (AUTHOR), Ong, Min6 (AUTHOR), Pollard, Debra7 (AUTHOR), Sivasubramaniyam, Sujan4 (AUTHOR), Stephensen, David8 (AUTHOR), Stoner, Nicola2 (AUTHOR), Kazmi, Rashid1 (AUTHOR)
Zdroj: Orphanet Journal of Rare Diseases. 11/25/2023, Vol. 18 Issue 1, p1-6. 6p.
Databáze: Academic Search Ultimate
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