The Tuscany Regional Network for rare diseases: from European Reference Networks' experience to registry based organisation and management model for rare diseases.

Autor: Pieroni, Federica1 (AUTHOR), Marrucci, Sonia1 (AUTHOR), Di Pietro, Linda2 (AUTHOR), Berni, Cecilia3,4 (AUTHOR), Scaletti, Cristina2,3,5 (AUTHOR) cristina.scaletti@regione.toscana.it
Zdroj: Orphanet Journal of Rare Diseases. 10/13/2023, Vol. 18 Issue 1, p1-16. 16p.
Databáze: Academic Search Ultimate
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