A systematic overview of rare disease patient registries: challenges in design, quality management, and maintenance.

Autor: Hageman, Isabel C.1,2 (AUTHOR) isabel.hageman@radboudumc.nl, van Rooij, Iris A.L.M.3 (AUTHOR), de Blaauw, Ivo1 (AUTHOR), Trajanovska, Misel2,4 (AUTHOR), King, Sebastian K.2,4,5 (AUTHOR)
Zdroj: Orphanet Journal of Rare Diseases. 5/5/2023, Vol. 18 Issue 1, p1-11. 11p.
Databáze: Academic Search Ultimate
Nepřihlášeným uživatelům se plný text nezobrazuje