Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience.

Autor: Krantz, Mattias1, Malm, Emma1, Darin, Niklas2,3, Sofou, Kalliopi2,3, Savvidou, Antri2,3, Reilly, Colin2,3 creilly@youngepilepsy.org.uk, Boström, Petra1
Zdroj: Child: Care, Health & Development. Sep2022, Vol. 48 Issue 5, p842-851. 10p. 2 Diagrams, 1 Chart.
Databáze: Academic Search Ultimate
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