Transformative effect of a Humanitarian Program for individuals affected by rare diseases: building support systems and creating local expertise.

Autor: Verma, I. C.1 (AUTHOR), El-Beshlawy, A.2 (AUTHOR), Tylki-Szymańska, A.3 (AUTHOR), Martins, A.4 (AUTHOR), Duan, Y.-L.5,6 (AUTHOR), Collin-Histed, T.7 (AUTHOR), van der Linde, M. Schoneveld8 (AUTHOR), Mansour, R.9 (AUTHOR), Dũng, V. C.10 (AUTHOR), Mistry, Pramod K.11 (AUTHOR) Pramod.mistry@yale.edu
Zdroj: Orphanet Journal of Rare Diseases. 4/4/2022, Vol. 17 Issue 1, p1-13. 13p.
Databáze: Academic Search Ultimate
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