The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems.

Autor: Tisdale, Ainslie1 (AUTHOR), Cutillo, Christine M.2 (AUTHOR), Nathan, Ramaa3 (AUTHOR), Russo, Pierantonio3,4 (AUTHOR), Laraway, Bryan5 (AUTHOR), Haendel, Melissa6 (AUTHOR), Nowak, Douglas7 (AUTHOR), Hasche, Cindy7 (AUTHOR), Chan, Chun-Hung8 (AUTHOR), Griese, Emily8,9 (AUTHOR), Dawkins, Hugh10 (AUTHOR), Shukla, Oodaye3 (AUTHOR), Pearce, David A.7,8,11 (AUTHOR), Rutter, Joni L.2 (AUTHOR), Pariser, Anne R.1 (AUTHOR) anne.pariser@nih.gov
Zdroj: Orphanet Journal of Rare Diseases. 10/21/2021, Vol. 16 Issue 1, p1-18. 18p.
Databáze: Academic Search Ultimate