Parent Experiences of Sanfilippo Syndrome Impact and Unmet Treatment Needs: A Qualitative Assessment.

Autor: Porter, Katherine Ackerman1 (AUTHOR) kmporter@rti.org, O'Neill, Cara2 (AUTHOR), Drake, Elise2 (AUTHOR), Parker, Samantha3 (AUTHOR), Escolar, Maria L.4,5 (AUTHOR), Montgomery, Stacey6 (AUTHOR), Moon, William6 (AUTHOR), Worrall, Carolyn6 (AUTHOR), Peay, Holly L.1 (AUTHOR)
Zdroj: Neurology & Therapy. Jun2021, Vol. 10 Issue 1, p197-212. 16p.
Databáze: Academic Search Ultimate