Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays.
| Autor: | Zurynski, Yvonne1,2 yvonne.zurynski@health.nsw.gov.au, Deverell, Marie1,2, Dalkeith, Troy1,3, Johnson, Sandra2, Christodoulou, John4,5,6,7, Leonard, Helen8, Elliott, Elizabeth J1,2, APSU Rare Diseases Impacts on Families Study group (CORPORATE AUTHOR) |
|---|---|
| Zdroj: | Orphanet Journal of Rare Diseases. 4/11/2017, Vol. 12, p1-9. 9p. |
| Databáze: | Academic Search Ultimate |
| Externí odkaz: |
|