Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study

Autor:	Cavero-Carbonell, Clara, Gras-Colomer, Elena, Guaita-Calatrava, Rosana, López-Briones, Carmen, Amorós, Rubén, Abaitua, Ignacio, Posada, Manuel, Zurriaga, Oscar
Zdroj:	Journal of Public Health, 2016 Jun 01. 38(2), e178-e186.
Databáze:	JSTOR Journals
Externí odkaz:	https://www.jstor.org/stable/48515570 Zobrazit plný text záznamu