The lived experience of mothers caring for school-age children with Pompe disease: A qualitative study

Autor: Cheng, Ju-Chun, Yang, Chia-Feng, Chou, Cheng-Chen, Shu, Ying-Mei, Liu, Pei-Ching, Lo, Kao-Wen, Chen, Chi-Wen
Zdroj: In Journal of Pediatric Nursing November-December 2024 79:24-31
Databáze: ScienceDirect