| Autor: |
Dahl, Mads Ronald, Boye, Niels, Hietala, Henri, Honka, Anita, Kaipainen, Kirsikka, Pärkkä, Juha, Saranummi, Niilo, Navarro, Maria Amparo, Galán, Hector, Martínez, María, Martínez, Javier, Meneu, Teresa, Sánchez, Ana Belén, Traver, Vicente, Sanna, Alberto, Nalin, Marco, Verga, Monica |
| Jazyk: |
angličtina |
| Rok vydání: |
2011 |
| Předmět: |
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| Zdroj: |
Dahl, M R, Boye, N, Hietala, H, Honka, A, Kaipainen, K, Pärkkä, J, Saranummi, N, Navarro, M A, Galán, H, Martínez, M, Martínez, J, Meneu, T, Sánchez, A B, Traver, V, Sanna, A, Nalin, M & Verga, M 2011, ICT Research Directions in Disease Prevention : Prevention of Diseases using personal ICT . in ICT Research Directions in Disease Prevention : This project is partially funded under the 7th Framework Programme by the European Commission . pp. 1-124 . |
| Popis: |
Despite long-term awareness that many chronic diseases are the product of unhealthy lifestyles our health promotion responses have not been very effective. One only needs to look at the statistics of OECD Health Data and CDC in USA to note that most countries are “in deep trouble”. Some call health promotion “health terrorism”. Persons who take care of their body and soul are not widely accepted role models of healthy lifestyles.In general we have a “black and white” view of the value of health: If you feel healthy then health is not a value that you want to pursue. But if you have an illness then you would like to be cured. The valuation dilemma traces back to human nature (and possibly to our genes); we are conditioned to prefer short term gains instead of long term gains even when a rational argument for the long term gains can be made. The above outlines some of the context that triggered us to set up this project and to deliver this White Paper. The other side of the story is related to ICT and our lessons from working with healthcareprofessionals in applying ICT to medical problems. ICT applications have tremendous potential in health and healthcare. But there are a lot of obstacles that need to be tackled. The applications are needed to enable its users and their employers to create value. For that you need an interdisciplinary team that understands in depth what is “the job to be done” that you wish to enable, support or improve with your ICT application. You also need to create solutions that can talk to each other. In other words, you need to create applications that are semantically and technically interoperable. For that you need standards and standard vocabularies. But interoperability alone is not enough. It’s a mandatory basic requirement. Identifying and resolving the “job to be done” is the greater(and primary) challenge. The Lalonde report from where the opening quote stems concluded (in 1974) that we need to engage individuals to take care of their own health and wellbeing. As one EU Commission official stated some timeago, we wanted to give individuals responsibility and then search for ways in which individuals could be supported with ICT to have a response ability when they are dealing with their own health issues on a dailybasis. The other main idea that guided us was that individuals interact not only with healthcareprofessionals in matters relating to their health but also, and much more frequently, with actors in theireveryday life (dealing with work, leisure, eating, exercising etc). We named this Co-Production of Health.These two constructs led us to the approach and results, which are now reported in this document.It is somewhat surprising to note that lifestyle management, awareness and motivation issues are not reallyin the interest of modern healthcare. Instead the healthcare focus is on evidence based activities. Thanks tothat focus great strides of progress have been made in medicine. But maybe it is now time also to seriouslyaddress the prevention of non-communicable (lifestyle related) diseases. What we have outlined in thisreport is a Health Outreach activity that is needed to support individuals in managing their lifestyles andwhere ICT can help individuals to navigate their health journeys.The White Paper is primarily aimed at providing a baseline for the planning of R&D activities that could be supported in the 8th Framework Program of the European Commission. In a nutshell, we would like to create a move towards a considered approach to “Engineer AwarenessTM”1 to move the field away from the medical push of “compliant patients” and towards individuals who areresponsible for their health and wellbeing and have the abilities to act responsibly and be supported in this by education, training and ICT enabled services. The project has been funded by the European Commission in the 4th ICT Call of the 7th FP. In technical terms the project was a “Specific Support Action” with 12 month duration. There were four partners who jointly have contributed to the results. Additionally the project had an Advisory Panel and organized three workshops to discuss and consult with outside experts. The names of the contributors are listed in the Appendices.The support and advice of the Advisory Panel and the experts is gratefully acknowledged. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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