Improving the impact of clinical documentation through patient-driven co-design: experiences with cancer pathology reports
| Autor: | Austin, Elizabeth J, Lee, Jenney R, Ko, Cynthia W, Kilgore, Mark R, Parker, Elizabeth U, Bergstedt, Brandelyn, Mitchell, Anita I, Javid, Sara H, Gore, John L |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | BMJ Health & Care Informatics BMJ Health & Care Informatics, Vol 27, Iss 3 (2020) |
| ISSN: | 2632-1009 |
| Popis: | Objective With the unprecedented rise of patient access to clinical documentation through electronic health records, there is a need for health systems to understand best practices for redesigning clinical documentation to support patient needs. This study used an experience-based co-design approach to inform the redesign of cancer pathology reports to improve their patient-centeredness and impact on patient engagement. Materials and methods Multiple methods for data collection and stakeholder engagement were used, including Delphi prioritisation with breast and colorectal cancer experts (n=78) and focus groups with patients with cancer (n=23) in the Seattle area. Iterative rounds of consensus generation and reflection were used to elicit themes and design recommendations for the development of patient-centred pathology reports on cancer care. Results Although each cancer type had nuanced elements to consider, common design requirements emerged around two key themes: (1) clinical documentation language should be framed in a way that informs and engages patients, and (2) clinical documentation format should be leveraged to enhance readability and information flow. Study activities illuminated detailed recommendations to improve the patient-centeredness of pathology reports based on patients’ and clinicians’ lived experience. Discussion The design requirements that emerged from this study provide a framework that can guide the rapid development of patient-centred pathology reports for all cancer types. Even further, health systems can replicate these methods to guide experience-based co-design of clinical documentation for contexts beyond cancer care. Conclusion This work offers practice-based learnings that can more effectively guide health systems in their clinical documentation redesign efforts. |
| Databáze: | OpenAIRE |
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