Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research
| Autor: | Quiroz-Aitken, Mhairi, Tully, Mary P., Porteous, Carol, Denegri, Simon, Cunningham-Burley, Sarah, Banner, Natalie, Black, Corri, Burgess, Michael, Cross, Lynsey, van Delden , J.J.M. (Johannes), Ford, Elizabeth, Fox, Sarah, Fitzpatrick, N.K. |
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| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Zdroj: | Quiroz-Aitken, M, Tully, M P, Porteous, C, Denegri, S, Cunningham-Burley, S, Banner, N, Black, C, Burgess, M, Cross, L, van Delden, J J M J, Ford, E, Fox, S & Fitzpatrick, N K 2019, ' Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research ', International Journal of Population Data Science, vol. 4, no. 1 . https://doi.org/10.23889/ijpds.v4i1.586 |
| DOI: | 10.23889/ijpds.v4i1.586 |
| Popis: | This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field. Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all. |
| Databáze: | OpenAIRE |
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