Congenital Cardiothoracic Surgeons and Palliative Care: A National Survey Study
| Autor: | Jess L. Thompson, Satish Rajagopal, Emily Morell, Rachna May, Elizabeth D. Blume |
|---|---|
| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty Palliative care Heart disease Psychological intervention 030204 cardiovascular system & hematology law.invention 03 medical and health sciences 0302 clinical medicine law 030225 pediatrics Humans Medicine Child Referral and Consultation Surgeons business.industry Cardiothoracic surgeons Palliative Care Survey research General Medicine Inpatient setting medicine.disease Intensive care unit Pediatric palliative care Cross-Sectional Studies Hospice and Palliative Care Nursing Emergency medicine business |
| Zdroj: | Journal of Palliative Care. 36:17-21 |
| ISSN: | 2369-5293 0825-8597 |
| DOI: | 10.1177/0825859719874765 |
| Popis: | Background: The majority of children with advanced heart disease in the inpatient setting die in an intensive care unit under 1 year of age following multiple interventions. While pediatric cardiology and palliative care provider attitudes have been described, little is known about pediatric cardiothoracic surgeon attitudes toward palliative care in children with advanced heart disease. Objective: To describe perspectives of pediatric cardiothoracic surgeons regarding palliative care in pediatric heart disease. Design: Cross-sectional web-based national survey. Results: Of the 220 surgeons who were e-mailed the survey, 36 opened the survey and 5 did not meet inclusion criteria (n = 31). Median years of practice was 23.5 (range: 12-41 years), and 87.1% were male. Almost all (90%) reported that they had experience consulting palliative care. While 68% felt palliative care consultation was initiated at the appropriate time, 29% felt it occurred too late. When asked the appropriate timing for palliative care consultation in hypoplastic left heart syndrome, 45% selected “at time of prenatal diagnosis” and 30% selected “when surgical and transcatheter options have been exhausted.” Common barriers to palliative care involvement included the perception of “giving up” (40%) and concern for undermining parental hope (36%). Conclusions: While a majority of pediatric cardiothoracic surgeons are familiar with palliative care, there is variation in perception of appropriate timing of consultation. Significant barriers to consultation still exist, including concern that parents will think they are “giving” up, undermining parental hope, and influence of palliative care on the medical care team’s approach. |
| Databáze: | OpenAIRE |
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