Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
| Autor: | Deborah Tomlinson, Eric Bouffet, Sylvain Baruchel, Lillian Sung, Michael Capra, Pamela S. Hinds, Maru Barrera, Hilary A. Llewellyn-Thomas, Janet Gammon, Mark L. Geenberg, Jocelyne Volpe |
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| Rok vydání: | 2006 |
| Předmět: |
Parents
Decision Making Helping behavior Qualitative property Nursing Methodology Research Nurse's Role Social support Nursing Professional-Family Relations Neoplasms Patient-Centered Care Surveys and Questionnaires Adaptation Psychological Humans Medicine Program Development Child Qualitative Research Terminal Care Medical education Oncology (nursing) business.industry Patient Selection Oncology Nursing Social Support General Medicine Focus Groups Helping Behavior Pediatric cancer Focus group Pediatric Nursing Quality of Life Pediatric nursing business Attitude to Health End-of-life care Morale Needs Assessment Qualitative research |
| Zdroj: | European Journal of Oncology Nursing. 10:198-206 |
| ISSN: | 1462-3889 |
| DOI: | 10.1016/j.ejon.2005.11.003 |
| Popis: | The ultimate aim of our research program is to provide strategies that facilitate parental decision-making for parents of children with cancer receiving end-of-life care. As a first step to develop this program, we needed insight into parents' reactions and opinions about the research methods planned for a larger study. In particular, we needed their opinions about the general experience of making the decision between palliative cytotoxic chemotherapy and supportive care alone and the factors that parents regard as important when making this decision. In addition, we wished to know whether the methodology proposed for the future study was easy to understand and whether it might cause unnecessary emotional trauma. Finally, we asked their opinions regarding the appropriate target sample of parents to include in the future study. Qualitative data about these issues were collected using focus group methodology involving seven participants. The comments made during the focus group discussions were content-analyzed for common themes. The results from the focus group discussion led to particular modifications in the proposed design and interview strategies planned for the future larger study. We found it was extremely beneficial to include a focus group pre-phase in a study that will interview parents in a high sensitivity area. |
| Databáze: | OpenAIRE |
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