Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs
| Autor: | France Légaré, Antoine Boivin, Trudy van der Weijden, Christine Pakenham, Jako Burgers, Jean Légaré, Sylvie St-Jacques, Susie Gagnon |
|---|---|
| Přispěvatelé: | Family Medicine, RS: CAPHRI School for Public Health and Primary Care |
| Rok vydání: | 2011 |
| Předmět: |
medicine.medical_specialty
business.industry Health Policy shared decision making Implementation Science [NCEBP 3] Alternative medicine MEDLINE Community Participation Public involvement Mental health translating research into practice Variety (cybernetics) systematic review Data extraction Caregivers Family medicine Practice Guidelines as Topic medicine Humans Family Patient participation Patient Participation business clinical practice guidelines Inclusion (education) |
| Zdroj: | Medical Decision Making, 31, E45-74 Medical Decision Making, 31(6), E45-E74. SAGE Publications Inc. Medical Decision Making, 31, 6, pp. E45-74 |
| ISSN: | 0272-989X |
| Popis: | Background. The role of patient and public involvement programs (PPIPs) in developing and implementing clinical practice guidelines (CPGs) has generated great interest. Purpose. The authors sought to identify key components of PPIPs used in developing and implementing CPGs. Data sources. The authors searched bibliographic databases and contacted relevant organizations. Study selection. In total, 2161 articles and reports were retrieved on PPIPs in the development and implementation of CPGs. Of these, 71 qualified for inclusion in the review. Data extraction. Reviewers independently extracted data on key components of PPIPs and barriers and facilitators to their operation. Data synthesis. Over half of the studies were published after 2002, and more than half originated from the United States, the United Kingdom, Australia, and Germany. CPGs that involved patients and the public addressed a variety of health problems, especially mental health and cancer. The most frequently cited objective for using PPIPs in developing CPGs was to incorporate patients’ values or perspectives in CPG recommendations. Patients and their families and caregivers were the parties most often involved. Methods used to recruit PPIP participants included soliciting through patient/public organizations, sending invitations, and receiving referrals and recruits from clinicians. Patients and the public most often participated by taking part in a CPG working group, workshop, meeting, seminar, literature review, or consultation such as a focus group, individual interview, or survey. Patients and the public principally helped formulate recommendations and revise drafts. Limitations. The authors did not contact the authors of the studies. Conclusion. This literature review provides an extensive knowledge base for making PPIPs more effective when developing and implementing CPGs. More research is needed to assess the impact of PPIPs and resources they require. |
| Databáze: | OpenAIRE |
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