Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

Autor: Katherine A. Froggatt, Danni Collingridge Moore, Lieve Van den Block, Julie Ling, Sheila A. Payne, Borja Arrue, Ilona Baranska, Luc Deliens, Yvonne Engels, Harriet Finne-Soveri, Katherine Froggatt, Giovanni Gambassi, Elisabeth Honincx, Viola Kijowska, Maud ten Koppel, Marika Kylanen, Federica Mammarella, Rose Miranda, Tinne Smets, Bregje Onwuteaka-Philipsen, Mariska Oosterveld-Vlug, Roeline Pasman, Sheila Payne, Ruth Piers, Lara Pivodic, Jenny van der Steen, Katarzyna Szczerbińska, Nele Van Den Noortgate, Hein van Hout, Anne Wichmann, Myrra Vernooij-Dassen
Přispěvatelé: General practice, Public and occupational health, APH - Aging & Later Life, APH - Quality of Care, Clinical sciences, Family Medicine and Chronic Care, End-of-life Care Research Group
Jazyk: angličtina
Rok vydání: 2020
Předmět:
Zdroj: Journal of the American Medical Directors Association, 21(8), 1051-1057. Elsevier Inc.
Journal of the American Medical Directors Association, 21, 8, pp. 1051-1057
the PACE consortium collaborative authors on behalf of the European Association for Palliative Care 2020, ' Palliative Care Implementation in Long-Term Care Facilities : European Association for Palliative Care White Paper ', Journal of the American Medical Directors Association, vol. 21, no. 8, pp. 1051-1057 . https://doi.org/10.1016/j.jamda.2020.01.009
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
Journal of the American Medical Directors Association, 21, 1051-1057
ISSN: 1525-8610
1538-9375
DOI: 10.1016/j.jamda.2020.01.009
Popis: Contains fulltext : 225338.pdf (Publisher’s version ) (Open Access) OBJECTIVES: The number of older people dying in long-term care facilities (LTCFs) is increasing globally, but care quality may be variable. A framework was developed drawing on empirical research findings from the Palliative Care for Older People (PACE) study and a scoping review of literature on the implementation of palliative care interventions in LTCFs. The PACE study mapped palliative care in LTCFs in Europe, evaluated quality of end-of-life care and quality of dying in a cross-sectional study of deceased residents of LTCFs in 6 countries, and undertook a cluster-randomized control trial that evaluated the impact of the PACE Steps to Success intervention in 7 countries. Working with the European Association for Palliative Care, a white paper was written that outlined recommendations for the implementation of interventions to improve palliative and end-of-life care for all older adults with serious illness, regardless of diagnosis, living in LTCFs. The goal of the article is to present these key domains and recommendations. DESIGN: Transparent expert consultation. SETTING: International experts in LTCFs. PARTICIPANTS: Eighteen (of 20 invited) international experts from 15 countries participated in a 1-day face-to-face Transparent Expert Consultation (TEC) workshop in Bern, Switzerland, and 21 (of 28 invited) completed a follow-up online survey. METHODS: The TEC study used (1) a face-to-face workshop to discuss a scoping review and initial recommendations and (2) an online survey. RESULTS: Thirty recommendations about implementing palliative care for older people in LTCFs were refined during the TEC workshop and, of these, 20 were selected following the survey. These 20 recommendations cover domains at micro (within organizations), meso (across organizations), and macro (at national or regional) levels addressed in 3 phases: establishing conditions for action, embedding in everyday practice, and sustaining ongoing change. CONCLUSIONS AND IMPLICATIONS: We developed a framework of 20 recommendations to guide implementation of improvements in palliative care in LTCFs.
Databáze: OpenAIRE