Access to Linguistically Appropriate Information for Blood and Marrow Transplant Patients: Results from Transplant Center Staff Survey
| Autor: | Lensa Idossa, Heather Moore, Ellen M. Denzen, Elizabeth Murphy, Lih-Wen Mau, Stacy Stickney Ferguson |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
medicine.medical_specialty Limited English Proficiency Decision Making Information needs computer.software_genre 03 medical and health sciences 0302 clinical medicine Patient Education as Topic Neoplasms Surveys and Questionnaires Medical Staff Hospital medicine Humans 030212 general & internal medicine Child Bone Marrow Transplantation Response rate (survey) business.industry Communication Barriers Treatment process Public Health Environmental and Occupational Health Linguistics Translating United States Cross-Sectional Studies Oncology Bone transplantation 030220 oncology & carcinogenesis Limited English proficiency Family medicine Health information business computer Needs Assessment Interpreter Patient education |
| Zdroj: | Journal of Cancer Education. 34:1031-1037 |
| ISSN: | 1543-0154 0885-8195 |
| DOI: | 10.1007/s13187-018-1407-8 |
| Popis: | Blood or marrow transplant (BMT) is a potentially curative treatment for numerous cancers and non-malignant disorders. BMT is a resource-intense treatment process, requiring patients to comprehend difficult health information and navigate a complex healthcare system. Linguistic and cultural barriers create additional challenges for patients with limited English proficiency (LEP) who may need translated information and interpretive services to make an informed decision about treatment. To identify information needs and gaps in language services for BMT patients with LEP, the National Marrow Donor Program® (NMDP)/Be The Match® administered a cross-sectional, web-based survey to 139 transplant centers (TCs) across the United States (U.S.). The survey yielded a 59% response rate. Findings show a significant need for translated patient education materials, especially in Spanish, Chinese, and Arabic, and practice gaps in the use of appropriate interpreters. Nearly one third of respondents indicated using family and friends to interpret for patients. The inability to locate educational resources in a specific language, lack of available bilingual staff, lack of a formal, centralized tracking system, and outdated tracking systems also pose significant barriers to meeting the language needs of BMT patients with LEP. |
| Databáze: | OpenAIRE |
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