Information needs and information seeking behaviour of patients during follow-up of colorectal cancer in the Netherlands
| Autor: | H.C.P.M. van Weert, Thijs Wieldraaijer, W. A. Bemelman, Laura A M Duineveld, Jan Wind |
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| Přispěvatelé: | General practice, Graduate School, ACS - Heart failure & arrhythmias, APH - Personalized Medicine, CCA - Cancer Treatment and Quality of Life, Surgery, AGEM - Digestive immunity, AGEM - Re-generation and cancer of the digestive system, APH - Quality of Care |
| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty Patients Colorectal cancer Information Seeking Behavior Specialty Information needs Disease Health informatics Article 03 medical and health sciences Information seeking behaviour 0302 clinical medicine General practitioners Surveys and Questionnaires medicine Humans 030212 general & internal medicine Prospective Studies Prospective cohort study Referral and Consultation Aged Netherlands Health Services Needs and Demand Oncology (nursing) business.industry Information seeking Public health Follow-up Middle Aged Patient Acceptance of Health Care medicine.disease Oncology 030220 oncology & carcinogenesis Family medicine Female business Colorectal Neoplasms Needs Assessment Follow-Up Studies |
| Zdroj: | Journal of Cancer Survivorship Journal of cancer survivorship, 13(4), 603-610. Springer New York |
| ISSN: | 1932-2259 |
| Popis: | Purpose: Adequately informing patients is considered crucial in cancer care, but need for information and information seeking behaviour of colorectal cancer (CRC) patients in the Netherlands are currently not well known. Methods: In a prospective study, patients participating in a specialty, hospital-based follow-up program completed three consecutive surveys over a 6-month period to analyse their information need and information seeking behaviour. Results: Patients (n = 259) felt well informed about their treatment (86%), disease (84%), and follow-up program (80%), but less well informed about future expectations (49%), nutrition (43%), recommended physical activity (42%), and heredity of cancer (40%). The need for more information on these subjects remained constant over the first five postoperative years. Patients who were younger, who had undergone chemotherapy, or who had comorbid conditions needed more information on several subjects. One in three patients searched for information themselves, mostly on the Internet. One in four patients consulted a health care provider for information, mostly their GP. Younger and more educated patients more often searched for information themselves, while patients undergoing chemotherapy more often consulted the hospital nurse. Information seeking behaviour remained constant over time. Conclusions: This study showed where current information provision is perceived as adequate and on which subject improvements can be made. It identifies information seeking behaviour and proposes ways to personalize information provision. Implications for Cancer Survivors: The GP is most frequently consulted for information; involving GPs in CRC follow-up could improve information provision on several subjects for several patients. |
| Databáze: | OpenAIRE |
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