Material and relational challenges of home-based renal care: a parental perspective on child chronic kidney disease
| Autor: | Andréa Bruno de Sousa, Anette Wickström |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
paediatric chronic kidney disease
phenomenology of practice medicine.medical_specialty Health (social science) Sociology and Political Science business.industry Omvårdnad Health Policy Perspective (graphical) Public Health Environmental and Occupational Health Nursing medicine.disease Renal care Home based materialities of care medicine Intensive care medicine business home-based renal care Kidney disease |
| Zdroj: | International Journal of Care and Caring. :1-17 |
| ISSN: | 2397-883X 2397-8821 |
| DOI: | 10.1332/239788221x16316492108700 |
| Popis: | Caring for a child with chronic kidney disease (CKD) requires parents to reorganise mundane routines and develop advanced technical skills. Parents’ strategies used to meet these challenges need greater understanding. This article takes inspiration from phenomenology of practice and material culture studies to analyse interviews with parents in Portugal. It shows that, although home-based care leads to worsened social inequities, parents use the available financial and human resources to manage the situation and create normality. While they experience becoming confined and close relationships are strained, the mundane practices and social relations of care bring hope and meaning to the family. Funding: Erasmus Mundus Joint Doctoral Program on Dynamics of Health and Welfare, Phoenix JDP Erasmus; Linkoeping University, LEcoles des Hautes Etudes en Sciences Sociales; Universidade de Evora and Escola Nacional de Saude Publica/UNL, Lisbon, Portugal [2012-1727] |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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