Building a bridge between patients and transplant healthcare professionals - a descriptive study

Autor: Fiona Loud, Hannah Maple, Nichon E. Jansen, Lone McColaugh, Daniel Gallego, David Paredes, Mark Murphy, Juan Fuertes, Anna Forsberg
Rok vydání: 2021
Předmět:
Zdroj: Transplant international : official journal of the European Society for Organ TransplantationReferences. 34(11)
ISSN: 1432-2277
Popis: This paper describes a pathway for collaboration between transplant healthcare professionals and organ recipients. Under the umbrella of the European Society for Organ Transplantation (ESOT) a joint initiative started from three Sections and Committees of ESOT: EDTCO (European Donation and Transplant Coordination Organisation), ETHAP (European Transplant Allied Healthcare Professionals) and ELPAT (Ethical, Legal and Psycho-social Aspects of Transplantation). The formal "kick-off" of the Advisory Board Meeting of the European Transplant Patients' Organisation (ETPO) was during the ESOT congress in 2019. The aim was to produce a series of statements to serve as a path to dialogue between patients and transplant professionals, and to define the next steps towards giving a voice to the patient network . In order to include the patients' perspectives, two surveys have been performed. The results identified the unmet needs and lead to a proposal for future plans. Educational activities have since started leading to a patient learning workstream. All initiatives taken have one purpose: to include patients, give them a voice, and build a foundation for collaboration between patients and transplant professionals. ESOT has created a platform for mutual understanding, learning and a collaborative partnership between ETPO and European donation and transplant professionals.
Databáze: OpenAIRE