Approaching End-of-Life Decisions in Adults with Congenital Heart Disease
| Autor: | Richard A. Krasuski, John D. Serfas, Matthew R. Krasuski |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Adult
Heart Defects Congenital Advance care planning medicine.medical_specialty Palliative care Heart disease 030204 cardiovascular system & hematology Medical care Advance Care Planning 03 medical and health sciences 0302 clinical medicine Documentation Humans Medicine 030212 general & internal medicine Patient participation Intensive care medicine Routine care Physician-Patient Relations Terminal Care business.industry medicine.disease humanities Death Cardiology and Cardiovascular Medicine business End-of-life care |
| Zdroj: | Current Cardiology Reports. 22 |
| ISSN: | 1534-3170 1523-3782 |
| DOI: | 10.1007/s11886-020-01428-5 |
| Popis: | Despite tremendous advances in medical and surgical care, some adults with congenital heart disease (ACHD) develop terminal conditions where therapy is limited. This paper reviews the important role of palliative care, advance care planning (ACP), and end-of-life (EOL) care in ACHD. Recent studies suggest that ACP is infrequently utilized in ACHD. Patients generally express interest in learning more about EOL care, though few ACHD providers have received adequate training to confidently conduct these discussions. Most barriers to communication are largely addressable, and an organized approach to ACP that encourages active patient participation followed by clear documentation is more likely to be successful. Palliative care appears complementary to standard medical care and can be introduced at any stage of illness, with proven benefit in similar patient populations. ACP is an important part of the routine care for all ACHD. Patient preferences should be identified early and palliative methods incorporated whenever necessary. |
| Databáze: | OpenAIRE |
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