Community-Guided Focus Group Analysis to Examine Cancer Disparities
| Autor: | Christina Yongue Hardy, Kristin Z. Black, Mary S. Mouw, Kathryn Stein, Lilli Mann, Emily Waters, Michael A. Yonas, Eugenia Eng, Jennifer Schaal, Carol Cothern, Alexandra F. Lightfoot, L. Robertson, Keon L. Gilbert, Janet Yewon Jeon, Stephanie Baker White |
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| Rok vydání: | 2016 |
| Předmět: |
Male
Community-Based Participatory Research Lung Neoplasms Health (social science) Sociology and Political Science Community-based participatory research Participatory action research Breast Neoplasms Article White People Education 03 medical and health sciences 0302 clinical medicine Nursing Health care Humans Medicine 030212 general & internal medicine Healthcare Disparities 030505 public health business.industry Health Status Disparities General Medicine Focus Groups Focus group Community-Institutional Relations Health equity Black or African American General partnership Accountability Female 0305 other medical science business Qualitative research |
| Zdroj: | Progress in Community Health Partnerships: Research, Education, and Action. 10:159-167 |
| ISSN: | 1557-055X |
| Popis: | Background : Accountability for Cancer Care through Undoing Racism™ and Equity (ACCURE) is a systems-change intervention addressing disparities in treatment initiation and completion and outcomes for early stage Black and White breast and lung cancer patients. Using a community-based participatory research (CBPR) approach, ACCURE is guided by a diverse partnership involving academic researchers, a nonprofit community-based organization, its affiliated broader based community coalition, and providers and staff from two cancer centers. Objectives : This paper describes the collaborative process our partnership used to conduct focus groups and to code and analyze the data to inform two components of the ACCURE intervention: 1) a “power analysis” of the cancer care system and 2) the development of the intervention’s training component, Healthcare Equity Education and Training (HEET), for cancer center providers and staff. Methods : Using active involvement of community and academic partners at every stage in the process, we engaged Black and White breast and lung cancer survivors at two partner cancer centers in eight focus group discussions organized by race and cancer type. Participants were asked to describe “pressure point encounters” or critical incidents during their journey through the cancer system that facilitated or hindered their willingness to continue treatment. Community and academic members collaborated to plan and develop materials, conduct focus groups, and code and analyze data. Conclusions : A collaborative qualitative data analysis process strengthened the capacity of our community–medical–academic partnership, enriched our research moving forward, and enhanced the transparency and accountability of our research approach. |
| Databáze: | OpenAIRE |
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