Psychosocial well-being and quality of life in siblings of children with congenital heart disease: A systematic review
| Autor: | Elke Kalbe, Hannah Liebermann-Jordanidis, Elisabeth Sticker, Konrad Brockmeier, Alice S Schamong |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Heart Defects Congenital Heart disease Cystic Fibrosis business.industry Siblings 030204 cardiovascular system & hematology medicine.disease Pediatrics 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Neoplasms Pediatrics Perinatology and Child Health Well-being medicine Global health Quality of Life Humans 030212 general & internal medicine business Child Psychosocial |
| Zdroj: | Journal of child health care : for professionals working with children in the hospital and community. 26(2) |
| ISSN: | 1741-2889 |
| Popis: | Congenital heart disease (CHD) is a major global health problem. Until recently, the siblings of this group did not receive much attention. This review, conducted from November 2019 to October 2020, aims to summarize knowledge about psychosocial well-being and quality of life (QoL), associated factors, and interventions for siblings of children with CHD. Systematic searches were conducted in PubMed, PsycINFO, PsycARTICLES, Web of Science via EBSCOhost, and CENTRAL. Twelve articles were included. Results showed that psychosocial well-being was impaired in 14% to 40% of siblings. Negative impact of illness was highest for CHD siblings compared to siblings of children with cancer, cystic fibrosis, or diabetes. QoL was impaired in up to one-third. Siblings of children with CHD and cancer rated their QoL lower than those of siblings of children with cystic fibrosis or type-1 diabetes. Associated factors were sibling age, gender, socioeconomic status, miscarriage, previous sibling death, visibility of illness, and severity of condition. Only one of two interventions focused on siblings of CHD children. Although data are scarce and inhomogeneous, it indicates that siblings of CHD children suffer from lower psychosocial well-being and QoL than siblings of children with other chronic conditions. Interventions to improve their situation should be developed. |
| Databáze: | OpenAIRE |
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