The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making?
| Autor: | Linda M. Hunt, Katherine B. de Voogd, Heide Castañeda |
|---|---|
| Rok vydání: | 2005 |
| Předmět: |
Adult
Male Parents Health Knowledge Attitudes Practice medicine.medical_specialty Attitude of Health Personnel media_common.quotation_subject Genetic counseling Decision Making MEDLINE Genetic Counseling Affect (psychology) Patient Education as Topic Pregnancy Informed consent Prenatal Diagnosis Surveys and Questionnaires medicine Humans Genetic Testing Psychiatry Sophistication Qualitative Research media_common Genetic testing Informed Consent medicine.diagnostic_test business.industry Communication Hispanic or Latino General Medicine Middle Aged Texas Family medicine Amniocentesis Female Patient Participation Risk assessment business Attitude to Health Qualitative research |
| Zdroj: | Patient Education and Counseling. 56:302-312 |
| ISSN: | 0738-3991 |
| DOI: | 10.1016/j.pec.2004.03.004 |
| Popis: | With the increasing technical sophistication of medicine, clinicians' task of assuring patient informed consent is increasingly elusive. Taking the example of prenatal genetic testing, we examine efforts to communicate the complexities of genetic knowledge and risk calculation to patients. In this qualitative, descriptive study, we interviewed 50 clinicians and 40 patients, and observed 101 genetic counseling sessions. We found the clinicians and patients have different goals, purposes, and values regarding testing, which affect their clinical interactions. The information the clinicians provide patients reflects their clinical interest in identifying and controlling pathophysiology, while patients, in contrast, are most concerned with protecting and nurturing their pregnancy. We argue informed patient decision-making about prenatal testing options requires information that is responsive to patient interests. We recommend developing a shared decision-making approach, to facilitate the full participation of both clinicians and patients in the decision-making process. |
| Databáze: | OpenAIRE |
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