Inconclusive Cystic Fibrosis neonatal screening results: long-term psychosocial effects on parents
| Autor: | Baroukh M. Assael, Luisa Zanolla, Paolo Rizzotti, Sandra Perobelli, Anna Tamanini, Carlo Castellani |
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| Rok vydání: | 2009 |
| Předmět: |
Male
Parents medicine.medical_specialty Pediatrics Pancreatic disease Cystic Fibrosis Anxiety Sensitivity and Specificity Cystic fibrosis Neonatal Screening Surveys and Questionnaires Adaptation Psychological medicine Humans Parent-Child Relations Newborn screening business.industry Public health Infant Newborn Case-control study General Medicine medicine.disease Family planning Case-Control Studies Family Planning Services Pediatrics Perinatology and Child Health Female medicine.symptom business Attitude to Health Psychosocial Stress Psychological |
| Zdroj: | Acta Paediatrica. 98:1927-1934 |
| ISSN: | 1651-2227 0803-5253 |
| DOI: | 10.1111/j.1651-2227.2009.01485.x |
| Popis: | Aim: Cystic Fibrosis (CF) Newborn Screening occasionally identifies neonates where a CF diagnosis can neither be confirmed nor excluded. To assess how parents of these infants cope with this ambiguous situation. Methods: Parents of 11 children with Ambiguous Diagnosis (group AD) were compared with parents of 11 children diagnosed with CF through neonatal screening [group Cystic Fibrosis Diagnosis (CFD)] and with parents of 11 Healthy Control children (group HC) matched for gender and age. Results: The emotional reaction to the inconclusive result was less pronounced in AD than in CFD (p = 0.003), and AD parents considered their infants as healthy as controls. Parents’ anxiety about their child’s health is stronger in CFD than in AD (p |
| Databáze: | OpenAIRE |
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