Kidney Dyads: Caregiver Burden and Relationship Strain Among Partners of Dialysis and Transplant Patients

Autor: Jacqueline Garonzik-Wang, Allan B. Massie, Fawaz Al Ammary, Sarah E. Van Pilsum Rasmussen, Macey L. Henderson, Ann K. Eno, Dorry L. Segev, Romi Lifshitz, Mary G. Bowring, Daniel C. Brennan
Jazyk: angličtina
Rok vydání: 2020
Předmět:
Zdroj: Transplantation Direct
Transplantation Direct, Vol 6, Iss 7, p e566 (2020)
ISSN: 2373-8731
Popis: Supplemental Digital Content is available in the text.
Background. Caring for dialysis patients is difficult, and this burden often falls on a spouse or cohabiting partner (henceforth referred to as caregiver-partners). At the same time, these caregiver-partners often come forward as potential living kidney donors for their loved ones who are on dialysis (henceforth referred to as patient-partners). Caregiver-partners may experience tangible benefits to their well-being when their patient-partner undergoes transplantation, yet this is seldom formally considered when evaluating caregiver-partners as potential donors. Methods. To quantify these potential benefits, we surveyed caregiver-partners of dialysis patients and kidney transplant (KT) recipients (N = 99) at KT evaluation or post-KT. Using validated tools, we assessed relationship satisfaction and caregiver burden before or after their patient-partner’s dialysis initiation and before or after their patient-partner’s KT. Results. Caregiver-partners reported increases in specific measures of caregiver burden (P = 0.03) and stress (P = 0.01) and decreases in social life (P = 0.02) and sexual relations (P
Databáze: OpenAIRE