Kidney Dyads: Caregiver Burden and Relationship Strain Among Partners of Dialysis and Transplant Patients
Autor: | Jacqueline Garonzik-Wang, Allan B. Massie, Fawaz Al Ammary, Sarah E. Van Pilsum Rasmussen, Macey L. Henderson, Ann K. Eno, Dorry L. Segev, Romi Lifshitz, Mary G. Bowring, Daniel C. Brennan |
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Jazyk: | angličtina |
Rok vydání: | 2020 |
Předmět: |
Ethics
Transplantation Kidney medicine.medical_specialty business.industry medicine.medical_treatment lcsh:Surgery lcsh:RD1-811 Caregiver burden 030230 surgery 03 medical and health sciences 0302 clinical medicine medicine.anatomical_structure Quality of life Spouse Internal medicine medicine ComputingMethodologies_DOCUMENTANDTEXTPROCESSING 030211 gastroenterology & hepatology Transplant patient business Dialysis Personal time |
Zdroj: | Transplantation Direct Transplantation Direct, Vol 6, Iss 7, p e566 (2020) |
ISSN: | 2373-8731 |
Popis: | Supplemental Digital Content is available in the text. Background. Caring for dialysis patients is difficult, and this burden often falls on a spouse or cohabiting partner (henceforth referred to as caregiver-partners). At the same time, these caregiver-partners often come forward as potential living kidney donors for their loved ones who are on dialysis (henceforth referred to as patient-partners). Caregiver-partners may experience tangible benefits to their well-being when their patient-partner undergoes transplantation, yet this is seldom formally considered when evaluating caregiver-partners as potential donors. Methods. To quantify these potential benefits, we surveyed caregiver-partners of dialysis patients and kidney transplant (KT) recipients (N = 99) at KT evaluation or post-KT. Using validated tools, we assessed relationship satisfaction and caregiver burden before or after their patient-partner’s dialysis initiation and before or after their patient-partner’s KT. Results. Caregiver-partners reported increases in specific measures of caregiver burden (P = 0.03) and stress (P = 0.01) and decreases in social life (P = 0.02) and sexual relations (P |
Databáze: | OpenAIRE |
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