Toward the Development of a Culturally Humble Intervention to Improve Glycemic Control and Quality of Life among Adolescents with Type-1 Diabetes and Their Families
| Autor: | Kimberly L Klages, Katherine Semenkovich, Angelica R. Eddington, Mary Ann E. Keenan, Gabrielle G. Banks, Ramin Alemzadeh, Kristoffer S. Berlin, Tiffany M. Rybak, Deborah A. Ellis, Alicia Diaz-Thomas, Rachel L Ankney |
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| Rok vydání: | 2019 |
| Předmět: |
Gerontology
Coping (psychology) 030505 public health Adolescent Psychological intervention Glycemic Control Focus group 03 medical and health sciences Psychiatry and Mental health 0302 clinical medicine Quality of life (healthcare) Diabetes Mellitus Type 1 Caregivers Intervention (counseling) Adaptation Psychological Quality of Life Humans 030212 general & internal medicine 0305 other medical science Psychology Child Psychosocial Applied Psychology Glycemic Qualitative research |
| Zdroj: | Behavioral medicine (Washington, D.C.). 47(2) |
| ISSN: | 0896-4289 |
| Popis: | Type-1 Diabetes (T1D) is a prevalent and costly disorder associated with substantial morbidity that differentially impacts low-income and/or minority adolescents and their families. The primary study objective was to develop a guiding model to inform culturally humble interventions for Mid-southern youth with T1D presenting with multiple correlates of suboptimal glycemic control and their families. In order to develop a clinic specific guiding model, conceptualizations of health, the need/type of intervention thought to be most helpful, the optimal structure, and strategies to improve the cultural/regional fit was ascertained from (A) youth with T1D (n = 13) and caregivers (n = 11) via qualitative interviews and, (B) pediatric endocrinologists and nurse practitioners (n = 6), and (C) nurses, diabetes educators, dietitians, and social workers (n = 9) via focus groups. Qualitative themes were synthesized to guide the treatment development model whereby Quality of Life and Glycemic Control would be directly enhanced by interventions to promote Coping, Support, Education, and Improved Psychosocial Functioning and indirectly through improved Adherence and T1D Autonomy delivered in a culturally humble way that affirms youths' T1D identify. These finding suggest that existing evidence-based treatments may provide a great fit for low-income, and/or minority youth with T1D and their families living in the mid-south, provided these interventions are delivered in culturally humble manner. |
| Databáze: | OpenAIRE |
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