Mental health history and social barriers impacting caregivers of infants with cystic fibrosis
| Autor: | Katelyn Krivchenia, Christopher J. Nemastil, Michelle L. Gillespie, Mary Lynn Dell, Diana Gilmore, Melissa Moore-Clingenpeel |
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| Rok vydání: | 2020 |
| Předmět: |
Pulmonary and Respiratory Medicine
medicine.medical_specialty Cystic Fibrosis Health Services Accessibility Odds 03 medical and health sciences 0302 clinical medicine 030225 pediatrics Medicine Humans Medical diagnosis Socioeconomic status Social work business.industry Infant Odds ratio Emergency department Environmental Exposure Mental health Confidence interval Hospitalization Mental Health 030228 respiratory system Caregivers Family medicine Child Preschool Pediatrics Perinatology and Child Health Tobacco Smoke Pollution business Emergency Service Hospital |
| Zdroj: | Pediatric pulmonologyREFERENCES. 56(2) |
| ISSN: | 1099-0496 |
| Popis: | OBJECTIVES Caregivers of infants with cystic fibrosis (CF) carry a heavy treatment burden for their child along with the inherent difficulties of raising an infant. This study investigated the impact of self-reported caregiver mental health diagnoses and social barriers during the 1st year of life on clinical outcomes. METHODS A retrospective chart review was conducted for infants seen in a large tertiary hospital CF clinic over a 5-year period. Baseline characteristics were collected, and documentation from physician and social work notes were reviewed. Demographics and clinical characteristics were compared by the presence or absence of self-reported mental health diagnoses, social barriers, and "emotional concern." RESULTS Analyses were conducted on 71 patients. Thirty-five percent of caregivers disclosed mental health diagnoses, 52% identified social barriers to care, and 55% reported feeling upset or fatigued. Having a caregiver with a self-reported mental health diagnosis was associated with tobacco smoke exposure (p |
| Databáze: | OpenAIRE |
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