Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research
| Autor: | Paul Spicer, Vanessa Y. Hiratsuka, Bobby Saunkeah, Michael T. Peercy, Marcia O'Leary, Julie A. Beans, Joseph Yracheta, Justin Reedy, R. Brian Woodbury |
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| Rok vydání: | 2019 |
| Předmět: |
0303 health sciences
030505 public health Social Psychology Communication Genomic research Environmental ethics Genomics Alaskan Natives Morals Article Indigenous Education 03 medical and health sciences Political science Indians North American Ethical concerns Humans Center (algebra and category theory) 0305 other medical science 030304 developmental biology |
| Zdroj: | J Empir Res Hum Res Ethics |
| ISSN: | 1556-2654 1556-2646 |
| Popis: | Genomic research raises unique ethical concerns among Alaska Native and American Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous Genomic Research (CEIGR) was created to foster research that takes these concerns into account while considering the sovereign status of AN/AI tribal nations. Relationships developed within CEIGR have allowed for effective, collaborative research among individuals who come from diverse cultures, political and historical backgrounds, and academic disciplines, and who work for organizations with varying resources, capacities, and expectations. The CEIGR framework may inform other groups seeking to conduct social science research related to genomic research with tribal people and their communities. |
| Databáze: | OpenAIRE |
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