Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014
| Autor: | Jean-Marie Degryse, Bénédicte Brichard, Jean Paul Misson, Nathalie Andersson, Françoise Verfaillie, Christine Fonteyne, Corinne Tonon, Georgette Hendrijckx, Marie Friedel, Isabelle Aujoulat, Marleen Renard, Ilse Ruysseveldt, Els Vandecruys, Katrien Moens |
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| Přispěvatelé: | UCL - SSS/IRSS - Institut de recherche santé et société, UCL - SSS/IREC/PEDI - Pôle de Pédiatrie, UCL - (SLuc) Service d'hématologie et d'oncologie pédiatrique |
| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male medicine.medical_specialty Palliative care Pédiatrie [D19] [Sciences de la santé humaine] Adolescent Interprofessional Relations lcsh:Special situations and conditions MEDLINE Pediatrics 03 medical and health sciences Young Adult 0302 clinical medicine Belgium Palliative Care/methods/psychology medicine Humans 030212 general & internal medicine Child Qualitative Research Patient Care Team Descriptive statistics business.industry Public health lcsh:RC952-1245 Palliative Care Pediatrics [D19] [Human health sciences] Infant Secondary data General Medicine Sciences bio-médicales et agricoles Integrated care Pediatrics/methods 030220 oncology & carcinogenesis Family medicine Child Preschool Female Thematic analysis business Qualitative research Research Article |
| Zdroj: | BMC Palliative Care, Vol. 17, no. 1, p. 77 [1-11] (2018) BMC PALLIAT CARE, Vol. 17, no.1, p. 77 BMC Palliative Care BMC Palliative Care, Vol 17, Iss 1, Pp 1-11 (2018) BMC palliative care, 17 (1 |
| Popis: | Background: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between the hospital and home for children diagnosed with life-limiting conditions. This national study describes how PLTs ensure continuity of care by describing their activities and the characteristics of the children they cared for from 2010 to 2014. Methods: Thematic analysis of open-ended questions was performed and descriptive statistics of aggregated data issued from annual reports, collected by the Belgian Ministry of Public Health through the Cancer Plan was used. A review panel of PLT members discussed the results and contributed to their interpretation. Results: Between 2010 and 2014, 3607 children and young adults (0-21 years) were cared for by the 5 Belgian PLTs (mean of 721/per year). Of these children, 50% were diagnosed with an oncological disease, 27% with a neurological or metabolic disease. Four hundred and twenty eight (428) children had died. For 51% of them, death took place at home. PLT activities include coordination; communication; curative and palliative care; education; research and fundraising. Different perceptions of what constitutes a palliative stage, heterogeneity in reporting diagnosis and the current lack of specific valid indicators to report PPC activities were found. Conclusion: PLTs are offering highly individualised, flexible and integrated care from diagnosis to bereavement in all care settings. Improvements in data registration and implementation of outcome measures are foreseen. SCOPUS: ar.j info:eu-repo/semantics/published |
| Databáze: | OpenAIRE |
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