Prevalence and correlates of the unmet supportive care needs of individuals diagnosed with a haematological malignancy
| Autor: | Rob Sanson-Fisher, Allison Boyes, Anthony Steele, Amy Waller, Catherine D'Este, Tara Clinton-McHarg |
|---|---|
| Rok vydání: | 2014 |
| Předmět: |
Adult
Male Pediatrics medicine.medical_specialty Activities of daily living Cross-sectional study MEDLINE Ambulatory Care Facilities Social support Surveys and Questionnaires Activities of Daily Living Service planning Medicine Humans Radiology Nuclear Medicine and imaging Fatigue Aged business.industry Australia Uncertainty Social Support Hematology General Medicine Middle Aged Clinical Practice Cross-Sectional Studies Oncology Socioeconomic Factors Family medicine Hematologic Neoplasms Haematological cancer Female business Haematological malignancy Sexuality Needs Assessment |
| Zdroj: | Acta oncologica (Stockholm, Sweden). 54(4) |
| ISSN: | 1651-226X |
| Popis: | Information about the unmet supportive care needs of haematological cancer patients is needed for service planning and to inform clinical practice. This study described the prevalence of, and factors associated with, unmet supportive care needs among haematological cancer patients.A total of 380 adults diagnosed with haematological cancer were recruited from the outpatient department at three comprehensive cancer treatment centres in Australia. Of these, 311 completed a self-report questionnaire. Unmet needs were assessed using the 34-item Supportive Care Needs Survey (SCNS-SF34). The data were examined using descriptive statistics and logistic regression.Overall, 51% (95% CI 45-57%) of participants reported having at least one 'moderate to high' level unmet need, while 25% (95% CI 20-30%) reported 'no need' for help with any items. Unmet needs were most commonly reported in the psychological (35%; 95% CI 30-41%) and physical aspects of daily living (35%; 95% CI 30-41%) domains. The three most frequently endorsed items of 'moderate to high' unmet need were: lack of energy/tiredness (24%; 95% CI 20-30%), not being able to do the things you used to do (21%; 95% CI 17-26%), and uncertainty about the future (21%; 95% CI 16-25%). Patients' sociodemographic characteristics influenced unmet needs more than disease characteristics. Patients who were female, aged less than 55 years or not in the labour force had higher odds of reporting 'moderate to high' level unmet supportive care needs.Unmet supportive care needs are prevalent among haematological cancer patients, particularly in the psychological and physical aspects of daily living domains. These findings provide valuable insight about the range of resources, multidisciplinary linkages and referral pathways needed to address haematological cancer patients' unmet needs. |
| Databáze: | OpenAIRE |
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