Online cognitive-behavioral based group interventions for adolescents with chronic illness and parents: Study protocol of two multicenter randomized controlled trials

Autor: Martha A. Grootenhuis, Linde Scholten, Heleen Maurice-Stam, Miriam Douma
Přispěvatelé: Amsterdam Reproduction & Development (AR&D), Graduate School, APH - Mental Health, Paediatric Psychosocial Care, Amsterdam Gastroenterology Endocrinology Metabolism, APH - Methodology, APH - Quality of Care, APH - Personalized Medicine
Jazyk: angličtina
Rok vydání: 2018
Předmět:
Parents
Adult
Coping (psychology)
Cognitive-behavioral therapy
Adolescent
Family functioning
medicine.medical_treatment
Psychological intervention
Chronic illness
Adolescents
law.invention
Psychosocial functioning
03 medical and health sciences
Study Protocol
0302 clinical medicine
Randomized controlled trial
law
030225 pediatrics
Adaptation
Psychological
medicine
Humans
030212 general & internal medicine
Affective Symptoms
Child
Internet
E-health
Cognitive Behavioral Therapy
business.industry
Mental Disorders
Online psychosocial intervention
lcsh:RJ1-570
Cognition
lcsh:Pediatrics
Social engagement
Cognitive behavioral therapy
Group intervention
Adolescent Behavior
Pediatrics
Perinatology and Child Health
Chronic Disease
Psychotherapy
Group
Quality of Life
Coping
business
Psychosocial
Clinical psychology
Zdroj: BMC Pediatrics, Vol 18, Iss 1, Pp 1-10 (2018)
BMC Pediatrics
BMC pediatrics, 18(1):235. BioMed Central
ISSN: 1471-2431
Popis: Background Adolescents with chronic illness (CI) and parents of a child with CI are at risk for psychosocial problems. Psychosocial group interventions may prevent these problems. With the use of cognitive-behavioral therapy, active coping strategies can be learned. Offering an intervention online eliminates logistic barriers (travel time and distance) and improves accessibility for participants. Aim of this study is to examine the effectiveness of two cognitive-behavioral based online group interventions, one for adolescents and one for parents: Op Koers Online. The approach is generic, which makes it easier for patients with rare illnesses to participate. Methods/design This study conducts two separate multicenter randomized controlled trials. Participants are adolescents (12 to 18 years of age) with CI and parents of children (0 to 18 years of age) with CI. Participants are randomly allocated to the intervention group or the waitlist control group. Outcomes are measured with standardized questionnaires at baseline, after 8 (adolescents) or 6 (parents) weeks of treatment, and at 6- and 12-month follow-up period. Primary outcomes are psychosocial functioning (emotional and behavioral problems) and disease-related coping skills. Secondary outcomes for adolescents are self-esteem and quality of life. Secondary outcomes for parents are impact of the illness on family functioning, parental distress, social involvement and illness cognitions. The analyses will be performed according to the intention-to-treat principle. Primary and secondary outcomes will be assessed with linear mixed model analyses using SPSS. Discussion These randomized controlled trials evaluate the effectiveness of two online group interventions improving psychosocial functioning in adolescents with CI and parents of children with CI. If proven effective, the intervention will be optimized and implemented in clinical practice. Trial registration ISRCTN ISRCTN83623452. Registered 30 November 2017. Retrospectively registered.
Databáze: OpenAIRE
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