Preparation and Planning for Future Care in the Deep South: Adapting a Validated Tool for Cultural Sensitivity
| Autor: | Rebecca S. Allen, Silvia Sörensen, Morgan K. Eichorst, JoAnn S. Oliver, Pamela Payne-Foster, Lisa Mieskowski |
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| Rok vydání: | 2018 |
| Předmět: |
Advance care planning
Research design Adult Male Rural Population Health Knowledge Attitudes Practice Psychometrics Patient Care Planning Interviews as Topic 03 medical and health sciences Advance Care Planning 0302 clinical medicine Surveys and Questionnaires Health care Humans 030212 general & internal medicine Cultural Competency Early Detection of Cancer Aged 030214 geriatrics business.industry Measurement Articles Prostatic Neoplasms General Medicine Middle Aged Confirmatory factor analysis Black or African American Scale (social sciences) Alabama Geriatrics and Gerontology business Psychology Gerontology Cultural competence Clinical psychology Qualitative research |
| Zdroj: | Gerontologist |
| ISSN: | 1758-5341 |
| Popis: | Background and Objectives This study describes the adaptation and validation of Sörensen et al. (2017)’s preparation for future care (PFC) scale with diverse samples including rural dwelling African Americans and certified nursing assistants (CNAs), and subsequent psychometric development. Research Design and Methods Responses to the five-subscale PFC survey from 33 rural African American men across 12 months and cognitive interviews with a subset of 12 of these men are described. Psychometric refinement included descriptive qualitative analyses of consultations with experienced lay research advisors (N = 4 and N = 7) regarding potential changes to the PFC and a confirmatory factor analysis of the resultant scale (N = 138). Results Cognitive interviews with rural African American men revealed difficulty understanding Eurocentric questions. Emergent themes included emotional avoidance of planning, considerations of nursing homes and possible care providers, and coping strategies. In two consultation meetings, trained lay research advisors recommended language modifications to the original questions and response options. Factor analyzing the resultant scale revealed support for the original subscale constructs (acceptable fit: χ2 = 205.03, df = 124, p < .001; root mean square error of approximation = .069 [.052–.085]; comparative fit index = .93; Tucker–Lewis index = .91). Discussion and Implications PFC and engagement in advance care planning is uncommon among African Americans, possibly due to distrust of and lack of cultural competency among health care professionals. The resulting tool and response options may be used as an interview guide/survey with African Americans to gain understanding about their preparation for future health care needs. |
| Databáze: | OpenAIRE |
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