The use of semistructured interviews to assess quality of life impacts for patients with uveal melanoma
| Autor: | R. Trafford Crump, Brianna C. Kopp, Ezekiel Weis |
|---|---|
| Rok vydání: | 2015 |
| Předmět: |
Adult
Male Uveal Neoplasms medicine.medical_specialty Time Factors Interview Psychometrics media_common.quotation_subject Brachytherapy Uveal Neoplasm 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Surveys and Questionnaires Medicine Humans Melanoma media_common Aged Retrospective Studies Aged 80 and over business.industry Reproducibility of Results Retrospective cohort study General Medicine Middle Aged Mental health Ophthalmology Feeling 030220 oncology & carcinogenesis 030221 ophthalmology & optometry Physical therapy Quality of Life Female business Qualitative research Follow-Up Studies |
| Zdroj: | Canadian journal of ophthalmology. Journal canadien d'ophtalmologie. 52(2) |
| ISSN: | 1715-3360 |
| Popis: | Objective There are limited studies on uveal melanoma and patient quality of life. However, the burden of implementing a patient-reported outcome measure to collect this information in a clinical setting is unknown. The objectives of this study were ( i ) to understand the issues of quality of life that are most important to patients undergoing treatment for uveal melanoma, ( ii ) to explore patient views on the European Organization for Research and Treatment of Cancer's (EORTC) ophthalmic oncology quality of life questionnaire (QLQ-OPT30), and ( iii ) to assess patient willingness to complete questionnaires measuring quality of life on an ongoing basis. Design This was a qualitative study. Participants The study included 10 patients treated for uveal melanoma with brachytherapy at the Alberta Ocular Brachytherapy Program, with a mean follow-up period of 16.3 months (range 5–33 months) after diagnosis. Methods The participants completed a qualitative interview over the phone with a trained interviewer between November 2014 and January 2015. Participants completed the QLQ-OPT30 according to their current symptoms and then elaborated on their responses. The participants then completed a semistructured interview to provide more information about the symptoms or issues that had the most impact on quality of life. Results The participants expressed positive feelings about the QLQ-OPT30; however, the participants' responses revealed that several themes, including mental health, impact of diagnosis and treatment on family, travel and financial burdens of treatment, and impact on work and home life, were missing in the questionnaire. Conclusions The QLQ-OPT30 performed well, but some missing constructs were identified. Furthermore, participants took 23 minutes to complete the QLQ-OPT30 with a trained interviewer, and this could present logistical challenges when using it at the point of care. |
| Databáze: | OpenAIRE |
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