Giving a voice to cataplectic experience: recollections from patients with narcolepsy type 1
| Autor: | Chiara Fante, Christian Franceschini, Elena Antelmi, Giuseppe Plazzi, Fabio Pizza, Francesca Ingravallo, Maria Filosa, Maria Claudia Folli |
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| Přispěvatelé: | Franceschini, Christian, Fante, Chiara, Folli, Maria Claudia, Filosa, Maria, Pizza, Fabio, Antelmi, Elena, Ingravallo, Francesca, Plazzi, Giuseppe |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Adult
Pulmonary and Respiratory Medicine medicine.medical_specialty genetic structures Cataplexy Emotions cataplexy attact subjective experience cataplexy attack chronic illness narrative medicine Chronic illness Cataplexy attack Narrative medicine Self-reported experience 03 medical and health sciences 0302 clinical medicine medicine Humans Narrative chronic illne Psychiatry education Narcolepsy education.field_of_study business.industry medicine.disease Scientific Investigations self reported experence 030228 respiratory system Neurology Mental Recall self-reported experience Self Report Neurology (clinical) medicine.symptom business 030217 neurology & neurosurgery |
| Zdroj: | Journal of clinical sleep medicine 16 (2020): 597–603. doi:10.5664/jcsm.8286 info:cnr-pdr/source/autori:Franceschini C.; Fante C.; Folli M.C.; Filosa M.; Pizza F.; Antelmi E.; Ingravallo F.; Plazzi G./titolo:Giving a voice to cataplectic experience: Recollections from patients with narcolepsy type 1/doi:10.5664%2Fjcsm.8286/rivista:Journal of clinical sleep medicine/anno:2020/pagina_da:597/pagina_a:603/intervallo_pagine:597–603/volume:16 J Clin Sleep Med |
| DOI: | 10.5664/jcsm.8286 |
| Popis: | STUDY OBJECTIVES: The objective of this study was to assess the narratives from the recalled accounts of cataplexy attacks of patients with narcolepsy type 1 (NT1). METHODS: Twenty-two drug-naive adult patients meeting the International Classification of Sleep Disorders criteria for the diagnosis of NT1 referring to the Narcolepsy Center of the University of Bologna in the year 2017 underwent a semistructured interview focusing on their personal experiences during the cataplectic attacks. Verbatim transcripts were analyzed by thematic analysis of elementary contexts using T-LAB software. RESULTS: The thematic analysis performed on the entire body text showed 3 clusters that explained 36.2%, 34.1%, and 29.7% of the variance, respectively: a cluster related to situations that trigger attacks of cataplexy, a cluster to bodily sensations, and another control strategies during episodes. The thematic content highlighted a tendency to disregard emotional experiences, thus affecting the ability to name, recognize, and regulate critical emotions. CONCLUSIONS: The study showed that patients with NT1 spoke of their cataplectic attacks in terms of self-reported bodily experiences, trigger situations, and their management. Therefore, patients may have developed strategies of symptom management focused on emotion avoidance and/or inhibition. CITATION: Franceschini C, Fante C, Folli MC, et al. Giving a voice to cataplectic experience: recollections from patients with narcolepsy type 1. J Clin Sleep Med. 2020;16(4):597–603. |
| Databáze: | OpenAIRE |
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