Advocating the rights of people with dementia to contribute to research: Considerations for researchers and ethics committees
| Autor: | Linda Schnitker, Karen Watson, Erin Conway, Kasia Bail, Margaret MacAndrew, Catherine Travers, Elaine Fielding, Claire M. O'Connor, Maria O'Reilly, Claudia Meyer, Jade Cartwright, Christine While, Amanda Fox, Marita Chisholm, Jacki Liddle |
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| Rok vydání: | 2021 |
| Předmět: |
Inclusion (disability rights)
media_common.quotation_subject Population Nursing Informed consent mental disorders medicine Dementia Humans Cognitive Dysfunction education media_common Community and Home Care education.field_of_study Informed Consent Human rights Ethics committee General Medicine medicine.disease Social engagement Research Personnel Human research Geriatrics and Gerontology Psychology Ethics Committees Research |
| Zdroj: | Australasian journal on ageingREFERENCES. 41(2) |
| ISSN: | 1741-6612 |
| Popis: | Objective Research involving people with dementia is vital to appropriately inform policy and practice decisions affecting this population. As dementia-care researchers, we frequently advocate to Human Research Ethics Committees for the right of people with dementia to choose whether to participate in research. This brief report provides some considerations for researchers and ethics committees. Method Descriptive summary of principles that argue for inclusion of people with dementia in research studies. Results Specifically excluding people living with dementia from research because of perceived cognitive impairment is inappropriate in light of human rights principles and the right to contribute to evidence-based care. Conclusion There is a difference between capacity to provide informed consent and ability to provide perspectives that are valid for each individual. Providing the opportunity for a person with dementia to participate in research and offering support to do this is a matter of human rights. |
| Databáze: | OpenAIRE |
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