Human research ethics committees members: ethical review personal perceptions
| Autor: | Boris Handal, Keagan Brewer, Kevin Watson, Marguerite Maher, Chris Campbell, Marc Fellman, Anne Marie Irwin |
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| Rok vydání: | 2021 |
| Předmět: |
media_common.quotation_subject
Computer-assisted web interviewing 0603 philosophy ethics and religion 03 medical and health sciences Surveys and Questionnaires Intellectual disability Quantitative research medicine Humans Ethical Review 030304 developmental biology media_common 0303 health sciences Professional development 06 humanities and the arts General Medicine Ambiguity Disposition Deception medicine.disease Applied ethics Research Design Perception 060301 applied ethics Psychology Social psychology Ethics Committees Research |
| Zdroj: | Monash Bioethics Review. 39:94-114 |
| ISSN: | 1836-6716 1321-2753 |
| DOI: | 10.1007/s40592-021-00130-8 |
| Popis: | This study aims to characterise Human Research Ethics Committee (HREC) members' perceptions on five main themes associated with ethics reviews, namely, the nature of research, ethical/moral issues, assent, participants' risk and HREC prerogatives issues. Three hundred and sixteen HREC members from over 200 HRECs throughout Australia responded to an online questionnaire survey. The results show that in general, HREC members' beliefs are reasoned and align with sound principles of ethical reviews. There seems to be a disposition for living up to ethical/moral values, avoiding the issue of consent waivers and respecting participants' welfare, as well as a sense of ambiguity about HREC prerogatives. Problematic areas were a tendency towards over-valuing quantitative research methods for their perceived validity and a neutral view on issuing consent waivers to participants with intellectual disability and, finally, the belief that research that limits disclosure, plans deception or actively conceals is morally unjustifiable. Implications for professional development and policy-making are discussed. |
| Databáze: | OpenAIRE |
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