Childhood disability in Turkana, Kenya:Understanding how carers cope in a complex humanitarian setting
| Autor: | Velma Nyapera, James Kisia, Hilary Rono, Maria Zuurmond, Victoria Mwenda, Jennifer J. Palmer |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
Opportunity cost
medicine.medical_treatment 030231 tropical medicine lcsh:Medicine Physical Therapy Sports Therapy and Rehabilitation Social Welfare Context (language use) Developmental psychology 03 medical and health sciences Social support 0302 clinical medicine humanitarian Nursing lcsh:HT51-1595 medicine Mainstream 030212 general & internal medicine childhood disability health care economics and organizations caregiver Original Research Rehabilitation Poverty Humanitarian aid business.industry lcsh:Public aspects of medicine lcsh:R lcsh:RA1-1270 lcsh:Communities. Classes. Races Psychology business |
| Zdroj: | Zuurmond, M, Nyapera, V, Mwenda, V, Kisia, J, Rono, H & Palmer, J 2016, ' Childhood disability in Turkana, Kenya : Understanding how carers cope in a complex humanitarian setting ', African Journal of Disability, vol. 5, no. 1, a277, pp. 1-8 . https://doi.org/10.4102/ajod.v5i1.277 African Journal of Disability African Journal of Disability, Vol 5, Iss 1, Pp e1-e8 (2016) |
| ISSN: | 2223-9170 |
| DOI: | 10.4102/ajod.v5i1.277 |
| Popis: | Background: Although the consequences of disability are magnified in humanitarian contexts, research into the difficulties of caring for children with a disability in such settings has received limited attention. Methods: Based on in-depth interviews with 31 families, key-informants and focus group discussions in Turkana, Kenya, this paper explores the lives of families caring for children with a range of impairments (hearing, vision, physical and intellectual) in a complex humanitarian context characterised by drought, flooding, armed conflict, poverty and historical marginalisation. Results: The challenging environmental and social conditions of Turkana magnified not only the impact of impairment on children, but also the burden of caregiving. The remoteness of Turkana, along with the paucity and fragmentation of health, rehabilitation and social services, posed major challenges and created opportunity costs for families. Disability-related stigma isolated mothers of children with disabilities, especially, increasing their burden of care and further limiting their access to services and humanitarian programmes. In a context where social systems are already stressed, the combination of these factors compounded the vulnerabilities faced by children with disabilities and their families. Conclusion: The needs of children with disabilities and their caregivers in Turkana are not being met by either community social support systems or humanitarian aid programmes. There is an urgent need to mainstream disability into Turkana services and programmes. |
| Databáze: | OpenAIRE |
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