Usability of eyetracking computer systems and impact on psychological wellbeing in patients with advanced amyotrophic lateral sclerosis
| Autor: | Andreas Hermann, Alexander Storch, Katharina Linse, Markus Joos, Wolfgang Rüger, Henning Schmitz-Peiffer |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
psychology [Caregivers]
Adult Male medicine.medical_specialty Palliative care Eye Movements etiology [Communication Disorders] psychology [Amyotrophic Lateral Sclerosis] 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Physical medicine and rehabilitation Computer Systems Surveys and Questionnaires medicine Humans In patient 030212 general & internal medicine ddc:610 Amyotrophic lateral sclerosis Aged business.industry diagnosis [Communication Disorders] Amyotrophic Lateral Sclerosis Usability Middle Aged medicine.disease Cross-Sectional Studies Neurology Caregivers physiology [Eye Movements] Communication Disorders Physical therapy complications [Amyotrophic Lateral Sclerosis] Disease Progression Quality of Life Eye tracking Female Neurology (clinical) business Psychology 030217 neurology & neurosurgery Stress Psychological |
| Zdroj: | Amyotrophic lateral sclerosis & frontotemporal degeneration 19(3-4), 212-219 (2017). doi:10.1080/21678421.2017.1392576 |
| ISSN: | 2167-9223 |
| DOI: | 10.1080/21678421.2017.1392576 |
| Popis: | Restrictions in communicative abilities are well known in patients with amyotrophic lateral sclerosis (ALS), but only few approaches in terms of evaluation of supportive technologies have been made. We aimed to assess the use and perceived usability of eye-tracking computer devices (ETCS) of severely impacted patients with ALS in an independent, direct manner and relate it to psychological well-being. ETCS enable active communication and social participation in the quadriplegic and anarthric disease state. Therefore, ETCS-based versions of widely used psychosocial questionnaires (ADI-12, SeiQoL-DW, WHO-5) as well as structured questions on communicative functioning and ETCS usage were developed to assess ALS patients, their next of kin and professional caregivers. Eleven patients (ALSFRS-R: 5.3 ± 5.9; ALS duration: 6.5 ± 3.8 years, range 1‒12; 82% invasively ventilated), nine next of kin and 10 professional caregivers could be assessed. Patients reported a mean use of their personal ETCS of 9.1 h per d (range 0.5‒16), with a high user satisfaction, preservation of communicative abilities and subjective indispensability of the ETCS. ETCS use was associated with higher psychological well-being. Next of kin and professional caregivers also nominated some critical aspect, which remains to be clarified. Our results strengthen the evidence that preserved mental autonomy influences psychological well-being in ALS and might even modify disease course and end-of-life-decisions in ALS. |
| Databáze: | OpenAIRE |
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