Feedback interaction of research, advocacy, and clinical care applied to ALS research in South America
| Autor: | Johnny Salameh, James D. Berry, Nazem Atassi, Amelia Calderón, Miriam E. Bucheli, Diana Chicaiza, Elise Digga, Ricardo López, Carolina Franco |
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| Rok vydání: | 2013 |
| Předmět: |
Male
Gerontology Weakness Biomedical Research Ethnic group Patient Advocacy Disease Patient advocacy Health care Prevalence medicine Humans Disease management (health) Amyotrophic lateral sclerosis business.industry Incidence Incidence (epidemiology) Global Perspectives Amyotrophic Lateral Sclerosis Disease Management South America medicine.disease Female Neurology (clinical) medicine.symptom business |
| Zdroj: | Neurology. 81:1959-1961 |
| ISSN: | 1526-632X 0028-3878 |
| DOI: | 10.1212/01.wnl.0000436610.28210.a5 |
| Popis: | Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease causing motor neuron loss and weakness. Worldwide prevalence is 4-6/100,000. Incidence is 1.5-2.7/100,000 per year and may be increasing. Studies suggest race and ethnicity affect the prevalence and incidence of ALS.(1) Understanding the impact of these variables on disease incidence could provide important insight into ALS determinants. A major roadblock for comparison across populations is the lack of epidemiologic data about ALS from many underdeveloped regions. In these regions, ALS is often undertreated due to health care disparities. This article discusses challenges for ALS research in South America (SA) and examines the ALS scientific record to explore the interactions and synergies of research, clinical care, and patient advocacy in underdeveloped regions. |
| Databáze: | OpenAIRE |
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